Where self-service tools and research support are insufficient, researchers can request additional data and technology services via consultation services.
Consultation services
Data Services
A bulk of the STARR data is accessible via STARR Tools (https://med.stanford.edu/starr-tools.html). This includes EHR data in Stanford internal data model or OMOP Common Data Model and radiology DICOMs. For the less common data types, the Research Technology team members can create custom datasets for you. Researchers must first complete an initial consultation with the Research Technology to understand the regulatory requirements e.g. IRB, Data Privacy Attestation and Data Risk Assessment. Allow a 4-6 week turnaround to complete all these procedures.
Common consultation requests include:
- Clarity data: Learn more about Clarity data in STARR
- Imaging data: Learn more about imaging data in STARR
- OMOP data: Learn more about OMOP Common Data Model
- Bedside monitoring data: Learn more about bedside monitoring data in STARR
- Other data: A variety of data types have been delivered to researchers in the past via STARR. These include clinical photos from the SHC Epic "Blob Server" tagged as "photo derm", XCelera database that contains echocardiogram metadata from SHC, EEG waveform Nikon Kohden files from LPCH, Aria Radiation Oncology and Stanford Cancer Registry databases. If you have an approved IRB, please follow the data access process. Depending on the specific data requested, the team will guide you through the remaining steps.
- An automated way to generate and deliver a specific data payload: This is most common if the data for specific cohorts need to be updated periodically to meet a sponsor's requirement.
Technology Services
Real time HL7 data: Research Technology supports a real time complex event processing engine based on HL7 feeds in STARR that can be customized to meet research needs. Lab and pharmacy orders, lab results, patient admits, transfers, and discharges and other essential messages can be used to configure real-time alerts.
Research technology consultations: Research Technology supports an extensive catalog of services in clinical research requiring data in STARR. Are you building a REDCap project where you need some data from STARR? Do you want a research data lake that is refreshed regularly and has data from disparate systems and is tuned for your cohort or disease area?
TDS "Front Door" to research: Do you need services from other TDS portfolios? Perhaps you need an integration of a new device in the clinic. Alternately, you need data from a system that no one has requested before. Research Technology partners with other TDS portfolios to bring a suitable solution for your research needs.
Request a consultation with Research Technology